He started losing weight in December of 2008, and his doctor attributed it to stress. My brother is 36 and was, up until the last month, a healthy, vivacious, happy man. I hope you see a hepatologist if you aren't, and maybe reconsider those extended warranties too.I'm new to using forums, so I apologize in advance if I'm doing this incorrectly. This site has stats for transplant centers in your area and around the country. Up until then, her MELD was in the low teens. She didn't get really sick until late 2014/early 2015. My wife was first diagnosed in 2009 with portal hypertension after a huge bleed. A doctor once told me that the liver can take a beating which is why so many people suffer with liver disease for years. A MELD of 16 should justify starting the evaluation process for the transplant waiting list. What's important is to get treatment from a hepatologist to help you minimize that 6 to 15% probability. MELD scores are snapshots in time and they fluctuate. My wife and I are also re-doing our kitchen. Remember, those numbers are just that, numbers, not a prognosis!!!!! And to be totally honest, if you can't shake this feeling of gloom, I would seriously suggest seeing a mental health professional. These will serve you well!! So, you could have many years or even decades yet. With that out of the way, let me say that we all experience liver disease differently and the main threads that come through from this on this site is that one needs to eat as healthy as you can, exercise and much as you can and try to keep as positive attitude as you can. Also, all that end stage means (usually), is that the liver is cirrhotic, that's all!! Also, so you have a comparison, I too have portal hypertension and my pressure was at 20!! Which is very high. As for my personal experience, I will admit that my MELD has not been higher that 10, but I have had cirrhosis for around seven (7) years and am still in a fairly stable pattern and I do have symptoms such as varices, HE (hepatic encephalopathy), etc. Are you seeing a hepatologist (liver specialist)? If not, I would get to one immediately!! As a matter of fact, there are some on this site who have been in a much worse state than what you describe for yourself and have been able to stop and/or reverse the course of their disease. There have and are many on this site who have and do have MELD scores much higher that 16 and are still around and in some cases, doing okay. Those percentages are just that, percentages for a whole population over time and aren't reflective of your personal situation. The main thing that I want to say is that a MELD of 16 isn't horrendous and it isn't the end of the world.
It's the game plan for any type and stage of liver disease.įirst of all, welcome and I am sorry to hear of your situation. Your continuing order of business (because you've been doing this all along) is to stay away from alcohol, drugs, cigarettes, etc. If you aren't getting this type of info from your doc, you need to ask why. Tests to be done, meds to take, possible procedures, transplant my only option, two years to live (I made it three), treating my Hep-C post transplant. When my hepatologist diagnosed me, he laid out my game plan. Your first order of business is to schedule an appointment with a hepatologist, if you aren't being seen by one already. People with alcoholic liver disease make excellent improvement when they stop drinking. Don't get caught up in general statistics. Nobody can give you a definite time of death. I made it 3 years and then I had a liver transplant in 2013. I had a MELD of 14 when I was diagnosed with end stage liver disease.
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